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GDPR statement for Members in the European Economic Area:
By logging into this website, you are providing consent for the NIH-designated RDCRN Data Management and Coordination Center (DMCC) in the United States to process your personal data, such as your name and contact information, for the purpose of conducting rare disease research for the duration of the rare disease research project. Your personal data may be shared with other members of the research project to conduct the research. You can contact the current DMCC at firstname.lastname@example.org with questions, to request to view or edit your personal data, or to withdraw your consent. You may contact the data supervisory authority in your country if you have a complaint about the processing of your personal data.